News
HTA Workshop Series
Bringing together HTA bodies, payers, regulators, patient organisations, clinicians, researchers and industry to address the challenges associated with the assessment and adoption of innovative therapies for rare and ultra-rare neuromuscular […]
SAVE THE DATE: 2nd International Clinical Care Symposium on Spinal Muscular Atrophy.
SMA Europe is pleased to announce the 2nd International Clinical Care Symposium on Spinal Muscular Atrophy (SMA), taking place on 4th and 5th March 2027 at the Grandior Hotel in […]
CMT Awareness Month 2026: Advancing understanding and treatment
October marks CMT Awareness Month, shining a light on Charcot-Marie-Tooth disease (CMT), a group of inherited conditions affecting the peripheral nerves and often causing muscle weakness, sensory changes and difficulties […]
Submission deadline extended: Dr. Imelda de Groot Award 2026
Duchenne Parent Project Netherlands has extended the submission deadline for the Dr. Imelda de Groot Award 2026 to 15 October 2026. Researchers, clinicians, and allied health professionals who have not […]
Becker Education & Engagement Day (BEED) Brings Community Together in Manchester
Two-days of learning, fostering community and sharing experiences across the Becker muscular dystrophy community.Â







