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Painting the Community Together: The First International Conference on Becker Muscular Dystrophy 

Two days of in-depth discussions and talks for the patient community The first International Conference on Becker muscular dystrophy, organized by Parent Project aps and Parent Project Muscular Dystrophy in [...]
13 October 2026

HTA Workshop Series

Bringing together HTA bodies, payers, regulators, patient organisations, clinicians, researchers and industry to address the challenges associated with the assessment and adoption of innovative therapies for rare and ultra-rare neuromuscular […]

8 October 2026

SAVE THE DATE: 2nd International Clinical Care Symposium on Spinal Muscular Atrophy.

SMA Europe is pleased to announce the 2nd International Clinical Care Symposium on Spinal Muscular Atrophy (SMA), taking place on 4th and 5th March 2027 at the Grandior Hotel in […]

8 October 2026

CMT Awareness Month 2026: Advancing understanding and treatment

October marks CMT Awareness Month, shining a light on Charcot-Marie-Tooth disease (CMT), a group of inherited conditions affecting the peripheral nerves and often causing muscle weakness, sensory changes and difficulties […]

1 October 2026

Submission deadline extended: Dr. Imelda de Groot Award 2026

Duchenne Parent Project Netherlands has extended the submission deadline for the Dr. Imelda de Groot Award 2026 to 15 October 2026. Researchers, clinicians, and allied health professionals who have not […]

27 September 2026

Becker Education & Engagement Day (BEED) Brings Community Together in Manchester

Two-days of learning, fostering community and sharing experiences across the Becker muscular dystrophy community. 

24 September 2026
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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • LGMD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
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