The second virtual meeting of the year for the TREAT-NMD Advisory Committee for Therapeutics (TACT) occurred on September 29th to review a programme in Duchenne muscular dystrophy. TACT is composed […]
News
Application Process Closing Soon for the Expert Becker Muscular Dystrophy Masterclass, Barcelona 2023
Our new education initiative in Becker muscular dystrophy has proven very popular, but there is still time to apply! The application process will be closing on Monday 9th October so, […]
Early Diagnosis for Duchenne Muscular Dystrophy Project
Early diagnosis for Duchenne muscular dystrophy presents its own challenges in terms of both the clinical and psychosocial sphere. In July, TREAT-NMD hosted a discussion led by Michelle Lorentzos (Paediatric […]
Coalition to Cure Calpain 3 in partnership with the National Organization for Rare Disorders (NORD®) launches LGMD2A/Calpainopathy Registry
Coalition to Cure Calpain 3 (C3) in partnership with the National Organization for Rare Disorders (NORD®) has launched a study with global reach to research Calpainopathy (including limb-girdle muscular dystrophy […]
CureDuchenne Launches the CureDuchenne Caregiver Course: A Free Virtual Resource for Duchenne Muscular Dystrophy Caregivers
CureDuchenne has launched a new caregiver course. This free virtual resource is designed to provide invaluable guidance and support to caregivers of individuals newly diagnosed with Duchenne muscular dystrophy and […]
Upcoming ENMC Workshops
For the past three decades, the European Neuromuscular Centre (ENMC) has organised over 270 workshops, bringing together an esteemed cohort of 20-25 participants. This assembly comprises leading researchers, clinicians, dedicated […]