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Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world

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Myotonic Dystrophy Awareness Day

Home / Uncategorised / Myotonic Dystrophy Awareness Day

Myotonic Dystrophy Awareness Day

International Myotonic Dystrophy Awareness Day

On September 15th, the global community recognises International Myotonic Dystrophy Awareness Day, an opportunity to raise awareness of myotonic dystrophy (DM) and its impact on individuals and families.

Myotonic dystrophy is a rare, inherited neuromuscular disease that affects muscle function and can impact multiple systems of the body. Greater awareness is essential to support earlier diagnosis, improve access to appropriate care and drive continued research into new treatments.

At TREAT-NMD, we are committed to supporting the global neuromuscular community and advancing better diagnosis, care and treatment for people living with conditions including myotonic dystrophy. Through collaboration between researchers, clinicians, patient organisations and industry, we can help drive meaningful progress for the DM community.

This International Myotonic Dystrophy Awareness Day, we stand with everyone affected by DM and those working to improve the future for people living with the condition.

Explore our Myotonic Dystrophy resources here

14 September 2026

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    • Core Datasets
      • DM dataset
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      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
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        • Gene Therapy for DMD
        • Mutation Specific Approaches
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      • DM Care
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      • BMD Care
      • FSHD Care
      • LGMD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • LGMD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Opportunities
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
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