Care Guides
Receiving the best care can dramatically improve patients’ quality of life and even prolong life expectancy. From diagnosis through to physical therapy, this section of the website aims to make all the information about caring for someone with a neuromuscular disease as accessible as possible.
The rarity of individual neuromuscular diseases has historically led to variation in how patients are diagnosed and cared for, with no global consensus on best practise. This can result in differences in care between countries and healthcare systems, and can also make it more challenging to compare outcomes in clinical research.
To address this, TREAT-NMD works with international clinicians, researchers and patient organisations to develop consensus guidelines that define best practise in neuromuscular care worldwide. These guidelines help support more consistent standards of care and strengthen the quality of clinical research.
Alongside these, we produce family-friendly guides written in clear, accessible language to help patients and families better understand recommended care.
