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TREAT-NMD

TREAT-NMD

Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world

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Partnerships and Collaborations

Home / Who We Are / Partnerships and Collaborations

Partnerships and Collaborations

The TREAT-NMD network is incredibly proud and honoured to work with a huge number of partners worldwide. Our collaboration with global partners has resulted in projects that have had a powerful impact on the neuromuscular community, and we continue to forge partnerships to ensure that neuromuscular patients across the globe have access to safe and efficacious therapies and the best standards of care. 

Patient Organisations  

We collaborate with patient organisations from across the globe on a wide range of projects including patient facing materials, educational masterclasses, the Global Registry Network and the TREAT-NMD Conference. As neuromuscular patients are at the heart of our mission and everything we aim to achieve, we are grateful for the support and expertise that these wonderful organisations provide. 

Our Patient Organisation partners include:

  • SMA Europe
    SMA Europe
  • Parent Project Muscular Dystrophy
    Parent Project Muscular Dystrophy
  • Cure Duchenne
    Cure Duchenne
  • Muscular Dystrophy Association
    Muscular Dystrophy Association
  • Duchenne UK
    Duchenne UK
  • World Duchenne Organisation
    World Duchenne Organisation
  • The RYR-1 Foundation
    The RYR-1 Foundation
  • Daniel Ferguson LGMD Foundation
    Daniel Ferguson LGMD Foundation
  • FSHD Society
    FSHD Society
  • Parent Project Muscular Dystrophy Italy
    Parent Project Muscular Dystrophy Italy

Life Science Industry

The life sciences industry is integral to our work in education and post-marketing surveillance. Industry partners provide support for our education masterclasses and e-learning platform to ensure the best standard of care is given to neuromuscular patients across the globe. In addition, our Advisory Committee for Therapeutics and Post-Authorisation Safety Study (PAESS) projects ensure our mission to support all stages of translational research is realised so that new and ground breaking therapies are made available to the neuromuscular patient population.  

The life sciences industry is also integral to the success of the biennial TREAT-NMD International Conference; our partners’ generosity and support ensures we can provide a platform for all stakeholders to inform, inspire and connect.  

Our Life Sciences Industry partners include:

  • Astellas
    Astellas
  • Pfizer
    Pfizer
  • PTC Therapeutics
    PTC Therapeutics
  • Roche
    Roche
  • Sarepta
    Sarepta
  • Aperito
    Aperito

Academic Institutions  

We are very proud to work with leading global experts in the neuromuscular field in all aspects of our work. Our key opinion leaders support and contribute to our efforts to improve the lives of those diagnosed with neuromuscular disease.  

Our Academic partners include:

  • Newcastle University
    Newcastle University
  • LUMC
    LUMC
  • The John Walton Muscular Dystrophy Research Centre
    The John Walton Muscular Dystrophy Research Centre
  • Ludwig Maximilian University of Munich
    Ludwig Maximilian University of Munich
  • Amsterdam University Medical Centers
    Amsterdam University Medical Centers

Clinical Research Organisations 

Our Project Management team works alongside clinical research organisations as an independent partner to support pharmaceutical companies through post-marketing authorisation. Our Post-Authorisation Safety Study (PAESS) projects and effective partnerships ensure that safe and efficacious treatments reach all eligible patients as quickly as possible.  

Our Clinical Research Organisation partners include:

  • Aetion
    Aetion

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NE4 5TG
United Kingdom
info@treat-nmd.com

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  • Home
  • Who We Are
    • About Us
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    • Governance
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  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
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  • What We Do
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    • The Global Registry Network
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    • Core Datasets
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