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TREAT-NMD

Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world

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Patients

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Patients

At TREAT-NMD our vision, mission, and goals  have the aim of improving the lives of people with rare neuromuscular diseases; we are working to advance the diagnosis and standards of care for everyone. Our disease specific information provides a summary of the neuromuscular diseases that we work on.

Living with a neuromuscular condition and receiving the best care significantly improves quality of life and well being. This is why our family guides cover from diagnosis through to physical therapy. Our guides have also been approved by both patient groups and doctors from around the world, and translated into multiple languages. Making knowledge on care accessible and inclusive.

To keep up to date with our news and events, join us as a member and/or sign up to our newsletter.

*Please note, we are not a registry ourselves. If you would like us to put you in touch with a registry, please email registries@treat-nmd.com

If you have any questions about what we do at TREAT-NMD please contact us.

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • LGMD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Opportunities
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
    • Submit an Event
    • Newsletter Sign-up
    • Contact Us